New treatments for rare diseases are changing the lives of patients, but the price can reach millions of dollars for a single person. Source: NYT > Business – Katie Thomas and Reed Abelson
Novartis Hid Manipulated Data While Seeking Approval for $2.1 Million Treatment
The failure to report the issue has not put patients at risk, the F.D.A. said, but the drugmaker could face criminal and civil penalties. Source: NYT > Business – Katie Thomas
Their Children Were Conceived With Donated Sperm. It Was the Wrong Sperm.
As genetic testing becomes more widespread, parents are finding that sperm used in artificial insemination did not come from the donors they chose. Source: NYT > Business – Jacqueline Mroz
Matter: Scientists Created Bacteria With a Synthetic Genome. Is This Artificial Life?
In a milestone for synthetic biology, colonies of E. coli thrive with DNA constructed from scratch by humans, not nature. Source: NYT > Business – CARL ZIMMER
Don’t Count on 23andMe to Detect Most Breast Cancer Risks, Study Warns
The DNA testing company, which has 10 million customers, misses nearly 90 percent of people with risky BRCA mutations. It says the criticism is overblown. Source: NYT > Business – HEATHER MURPHY
Gene-Edited Babies: What a Chinese Scientist Told an American Mentor
Stanford is investigating Stephen Quake’s interactions with He Jiankui, the scientist who performed the controversial experiment. Source: NYT > Business – PAM BELLUCK